So much for the every Sunday posts. I will blame the holiday and try to do a better job next week.
After the final stage of the bike race in Denver, mommy and I headed to Indianapolis for our "stealth" medical trip. She called it stealth because we only told a few people we were in town since we were so short on time and wouldn't get a chance to do much. We will be back the week of Thanksgiving for a few days with the whole family. This time I got my own seat on the plane and travelled in style.
The purpose of the trip was to meet with the metabolic doctor. Its pretty complicated but I will try to explain a little bit of what has been going on. If medical jargon bores you, feel free to skip to the end of this post and look at pictures instead.
Every baby born in the US is tested for a variety of genetic diseases before they leave the hospital. Most people have heard of PKU but it tests for about 40 other rare things as well. I tested positive for Carnitine Uptake Defect or CUD. For everyone else, carnitine helps stabilize blood sugar by converting fatty acids to glucose/energy. Because my levels of carnitine are too low, I cannot do this so my blood sugar can drop to dangerous levels if I don't eat often enough and take a carnitine supplement. Besides my vomiting issue, I shouldn't have any problems now or in the future as long as we follow those rules. I had to go see Dr. Escobar so he could evaluate my development so far and try to figure out why my levels are low. I was excited to go to Peyton Manning Children's Hospital, as I assumed I would get to meet the legend. Instead, they pulled a bait and switch and tortured me to take tons of blood. If this is how they treat kids here, I can see why Peyton had to leave town and join the Broncos. I think #18 should stick to football and leave caring for children to someone else! The bloodwork was done to rule out some scary things with chromosomes and mitochondrial diseases. If they are all negative (which mom assures me they will be because I currently look so good), then I will come off my medicine in November for a month. If my levels are okay off the supplement then we will assume whatever was going on has resolved. If my carnitine level is low again, then it confirms I have CUD and will have to stay on the medicines and food schedule for a long time. Whew. Long explanation.
I got to see my friend Jude again while I was there.
Since we were on the ground, mom and Lisa put gift wrap down for us. Kept our clothes clean but our hands...not so much. "A" for effort mom and Lisa
mom handing over the car key
Jude and I deciding whose carseat will fit better in the driver seat
My favorite thing right now is reading magaizines
...or eating them. Let me know if you want your pages back, Gina
Gina didn't want her magazine back and let me take it to the airport
I am doing a great job sitting up and I roll to get anywhere I want. So the baby gates have come out. Everything is fair game now!
My mom had her usual airline luck and our flight was delayed causing us to miss our connecting flight. So we spent an extra night in Indianapolis and got to wake up at 4am Sunday to get home. Now its back to the school routine around here.
Cheers!
alexa