Monday, July 22, 2013

16 Months +10 days

The 16 month mark snuck up on us and we have been too busy with planned camping trips, visitors, and medical management to get organized enough to post. So its a little late but it still counts.

weight- 19.8# My metabolism continues to be slightly out of whack but my weight is heading back up again after losing almost 2 pounds. Good thing I had plenty of body fat to spare while my blood sugar figured out how to regulate itself better.


Here I am before my hospital stay at 21#

and here i am after at just over 19#

Teeth- too many to count. I have 4 molars in and just a couple gaps left for new teeth. 

Sleep- Mom says that somewhere out there is a newborn who sleeps worse than I do. We just haven't met them. She will no longer complain about waking up every 3 hours to bring me a bottle because its a whole lot better than my sleep habits the past couple weeks. I really do want to sleep longer, but I just get sooo hungry!


Words- I finally say mommy. Doggie is still my favorite but my vocabulary is increasing little by little. I'm not sure I ever really have more than 4 words in my revolving vocabulary at one time but at least I have variety. For example, I gained "go" but lost "uh-oh". Next month may include daddy  

New tricks- I am a really fast runner now. And my climbing skills are improving. I have the desire, just not quite the arm strength to get up on things. But by next month it will happen. Watch out table tops. Nothing is safe. 

Mood- This is a necessary category this month because it was the most affected by the low blood sugars that continued until a couple days ago. I had been an emotional wreck. One minute I was my normal happy self and the next minute I was sobbing or kicking on the floor or swiping at people. I'm not even sure I could remember why after about 10 seconds. To make it known that I was not happy, I worked on my "mean scrunchy face" to scare people. It's hard to catch on camera but mom got a half version when she announced it was time to get out of the tub. And she did look scared. Not quite as scared as the passengers joining me on our LAX-GJ flight 2 weeks ago but close.



As soon as we got back from California, Jude came to visit with his parents. Its the first time he has been to Colorado. We got along great and did some real fun things. We are hoping to get to hang out again in the fall. His mom is my GI specialist but she looks too young to be a doctor so I wasn't scared of her.



Jude helping me with the hard words

I slept in a shirt I borrowed from Jake Johnson. It wins the bedhead photo of the week contest for sure

This past weekend we camped at Mt. Evans. Dad was in a bike race where you start at the bottom of the mountain and ride up 27 miles to over 14,000 feet. Then the race is over and you coast back down on a torn up road. Doesn't that sound like a good time?  Our camping spot was half way up the mountain so we were able to just walk down the driveway and watch the riders go by. We have to change some sleeping arrangements in the RV before next weeks camping trip to Ridgway. Apparently mom wants more than 3.5 hours of sleep in a night. 


Dad going under the banner. You can also see the treeless ridge he is heading towards. Its at the very top of the picture. Pretty impressive.

I helped him train for the race by pacing his run through the neighborhood. Don't I look fast! Dad can hardly keep up.

And finally, the travel hiatus lasted about two weeks. After our Calif debacle, mom went on a mission to find a doctor who specializes in exactly the type of metabolic disorder that I have. So next Monday we are headed to Washington DC to meet him. He will be able to give us a lot of answers as to why things likely happened and how to prevent serious problems in the future. I'm not looking forward to the long plane ride, but I found a way to keep busy this weekend during the long RV ride. I bet it will help for future trips as well...




Now that's what I'm talking about.

Next post will be a  medical update when we return from DC. I may even have some cool pictures from our very brief trip there.


Cheers!

alexa




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